Hope & healing for our family
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Hello, my name is Zahra and I am so glad you’re here! I am a military spouse and mother to two special needs kids, 4 & 3 years old and a 18 month old daughter. My hope is to encourage you to sing through whatever life brings your way.
We started our journey when my boys suddenly regressed at 15 month age, they both followed same track . It was heart breaking to see them change and not understand what is happening ,
Both my boys went through pretty much similar steps, I have listed my older son's symptoms below;
1. He lost his speech and went to non verbal phase ,he only would scream or cry.
2. No response to his name .
3. Zero awareness of surrounding
4. No fear or sense of danger .
5. Extreme sensory issues and picky eater
6. No emotion or expression of excitement or happiness .
7. He was lost in his own world .
No doctors helped as they had no idea on most of the things when it comes to the autism spectrum. My husband started going through sleepless night, longs shower at end of the day to hide tears and exhausting and frustrating environment where we searched and searched to find answers. Educating ourself towards autism and reading as much as possible helped us a lot but it was a long struggle. I can post separately which books helped us . We started to see a;
Behavioral pediatrician
Neurologist
Allergy specialist
Pediatric gastrologist and
Naturopath doctor.
They all helped to some extent with different tests and blood work and genetic testing but then what's next after test....
While dealing with all specialist we felt as they all are either experimenting on our child or either have no clue what's going on and just trying to appease us. That's when me and hubby decided to take things in our hands and make it our soul purpose of this life to heal our boys and make them as independent as possible and the key to that is EARLY INTERVENTION. As they are still young and their brain is still developing so they still have room to fix few things and have a better quality of life & that means it will need ( multiple behavioral therapies like floor time , PRT and sun rise program ) they will need early dietry intervention quality real home made food free from chemicals and pesticide as they are not able to process them because of expressed MFTHR mutation, its a genetic condition triggered by environmental facts can make it worst .
Its been almost over a year we have started this journey , our boys are on waiting list for autism child budget and therapies from government but no help is provided as of yet. They are still working on application from 2015 and yet there is a very long wait list for my boys to get any service and we are loosing time for early intervention . So this is when my husband started to work two jobs. He works his normal military job and started doing another part time job during evenings and weekends to make extra money for therapies. He was working 7 days a week just so we can provide our kids therapies as they are very expensive.
I quit my job and i help my kids at home as they are fully dependant on me . After paying for therapies and organic food we were barely surviving month to month to pay rent, bills, insurance and gas as most of their appointments are in another city as we are in small town and Trenton doesn't have many resources here.
We have done so much of hard work and struggle. We have been pushing things around as much as we can but that was affecting mine and my husband's health alot. My husband was not able to sleep well because of overload of work he had to do to provide for therapies and yet his body crashed into a horrible episode of seizures right on New years day. He had 6 clonoic toxin seizures within 45 min we had to call 911 and took him to Emerg. I had to take help of neighbors to watch kids so i could be with him at hospital . We have been through so much but we are still standing strong as we are warriors and we will face all that this life has to bring to us . We are the only advocates for our autistic kids and my husband is my only support. I am standing strong here doing everything possible to keep my family together working on every aspect to heal them and bring them back to normal life .
Please i request you all who are here to read this to help us, we need your help. This is the most tought time on us ever but we are still not giving in and hoping for more healing and better life help us on this time . Your love and support means so much to us and can actually make a difference for us and our kids
Thanks in advance
Regards
A Warrior Mom Zahra .
We started our journey when my boys suddenly regressed at 15 month age, they both followed same track . It was heart breaking to see them change and not understand what is happening ,
Both my boys went through pretty much similar steps, I have listed my older son's symptoms below;
1. He lost his speech and went to non verbal phase ,he only would scream or cry.
2. No response to his name .
3. Zero awareness of surrounding
4. No fear or sense of danger .
5. Extreme sensory issues and picky eater
6. No emotion or expression of excitement or happiness .
7. He was lost in his own world .
No doctors helped as they had no idea on most of the things when it comes to the autism spectrum. My husband started going through sleepless night, longs shower at end of the day to hide tears and exhausting and frustrating environment where we searched and searched to find answers. Educating ourself towards autism and reading as much as possible helped us a lot but it was a long struggle. I can post separately which books helped us . We started to see a;
Behavioral pediatrician
Neurologist
Allergy specialist
Pediatric gastrologist and
Naturopath doctor.
They all helped to some extent with different tests and blood work and genetic testing but then what's next after test....
While dealing with all specialist we felt as they all are either experimenting on our child or either have no clue what's going on and just trying to appease us. That's when me and hubby decided to take things in our hands and make it our soul purpose of this life to heal our boys and make them as independent as possible and the key to that is EARLY INTERVENTION. As they are still young and their brain is still developing so they still have room to fix few things and have a better quality of life & that means it will need ( multiple behavioral therapies like floor time , PRT and sun rise program ) they will need early dietry intervention quality real home made food free from chemicals and pesticide as they are not able to process them because of expressed MFTHR mutation, its a genetic condition triggered by environmental facts can make it worst .
Its been almost over a year we have started this journey , our boys are on waiting list for autism child budget and therapies from government but no help is provided as of yet. They are still working on application from 2015 and yet there is a very long wait list for my boys to get any service and we are loosing time for early intervention . So this is when my husband started to work two jobs. He works his normal military job and started doing another part time job during evenings and weekends to make extra money for therapies. He was working 7 days a week just so we can provide our kids therapies as they are very expensive.
I quit my job and i help my kids at home as they are fully dependant on me . After paying for therapies and organic food we were barely surviving month to month to pay rent, bills, insurance and gas as most of their appointments are in another city as we are in small town and Trenton doesn't have many resources here.
We have done so much of hard work and struggle. We have been pushing things around as much as we can but that was affecting mine and my husband's health alot. My husband was not able to sleep well because of overload of work he had to do to provide for therapies and yet his body crashed into a horrible episode of seizures right on New years day. He had 6 clonoic toxin seizures within 45 min we had to call 911 and took him to Emerg. I had to take help of neighbors to watch kids so i could be with him at hospital . We have been through so much but we are still standing strong as we are warriors and we will face all that this life has to bring to us . We are the only advocates for our autistic kids and my husband is my only support. I am standing strong here doing everything possible to keep my family together working on every aspect to heal them and bring them back to normal life .
Please i request you all who are here to read this to help us, we need your help. This is the most tought time on us ever but we are still not giving in and hoping for more healing and better life help us on this time . Your love and support means so much to us and can actually make a difference for us and our kids
Thanks in advance
Regards
A Warrior Mom Zahra .
Organizer
Zahra Awan
Organizer
Trenton, ON