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Diagnosis story:
Makayla and Diego found out at their 20th week of pregnancy, that baby Tegan had a heart problem. As their pregnancy continued, they were referred to the OU Children's Hospital in OKC. Every week, they had to drive from Tulsa to OKC for some sort of appt or testing. The doctors had diagnosed baby Tegan with Heterotaxy and a complete heart block. As the pregnancy continued, we were finding out more and more things wrong with baby Tegan's heart. The doctors were HOPING that the pregnancy could make it to 32 weeks. About the 34th week their doctors told Makayla/Diego - not to get their hopes up that baby Tegan would survive very long after birth. The OU Children's Hospital cardiologist surgery team of doctors were baffled they had never seen anyone with all of these complex heart issues. They had seen some hearts with one or two issues, but never as complex as hers. They said it was one of the worst heart diseases they have ever seen and determined it was inoperable. No one gave up hope, we all stayed positive, there just had to be a way she would survive. Around the 35th week, Makayla had received a phone call from the cardiologist surgery team. They had come up with the last idea, let's get baby Tegan on the heart transplant list! That would solve all of Tegan's problems!
Birth story:
March 30, 2020 - 8:10am Tegan Dawn Jungo was born at 37weeks and 5 days via C Section, weighing 5lb 15oz and 17in. After birth on the way to the operation room Tegan's heart stopped beating and they did CPR on her for 15 minutes and almost called it when her heart started beating again! She is such a little fighter!! She quickly went into surgery and received temporary pacing wires in her chest. She is in the CVICU at OU Children’s hospital where her chest currently remains open right now due to swelling and complications with blood pressure. Those need to be improved in order to close the chest back up and place a more permanent pacemaker in the abdomen. Once stable and strong enough she will be transferred to St. Louis Children's hospital. From there they are hoping to get her added on the transplant list and wait for an available heart. We are praying and keeping our faith strong for our little fighter. God’s watching and she’s got this! She is SO strong and such a fighter. By the way the doctors are talking, this process could take months and months. Makayla will be next to Tegan this whole time. Makayla/Diego are still trying to figure out the commuting back and forth from Tulsa to OKC and the commuting from Tulsa to St. Louis. They also have to make sure they are maintaining their home in Tulsa, working, and traveling to go see Tegan. Currently with all of this Covid-19 stuff going on, the St. Louis Ronald McDonald house is closed. So once Tegan is up at St. Louis Children's hospital, the lodging will become an issue for Makayla & Diego. Hoping the Covid-19 issue is over by the time Tegan and Makayla/Diego get there.
Tegan's full complete diagnosis:
Heterotaxy, complete heart block, Left atrial isomerism, common atrium, balanced AV canal, Double outlet right ventricle with non committed VSD, Interrupted inferior vena cava, sever noncompaction cardiomyopathy, severe atrial stenosis, and mild pulmonary stenosis.
These funds would help with all travel expenses, pay medical bills that are 'in and out of network'. Help with any/extra household expenses while they are away. Thank you for any support you can provide. If you can't help with this fundraiser, could we ask of you, please say some extra prayers for baby Tegan and her momma and daddy. We will update this page with photos, and health updates, hopefully maybe every other day. Thank you
Makayla and Diego found out at their 20th week of pregnancy, that baby Tegan had a heart problem. As their pregnancy continued, they were referred to the OU Children's Hospital in OKC. Every week, they had to drive from Tulsa to OKC for some sort of appt or testing. The doctors had diagnosed baby Tegan with Heterotaxy and a complete heart block. As the pregnancy continued, we were finding out more and more things wrong with baby Tegan's heart. The doctors were HOPING that the pregnancy could make it to 32 weeks. About the 34th week their doctors told Makayla/Diego - not to get their hopes up that baby Tegan would survive very long after birth. The OU Children's Hospital cardiologist surgery team of doctors were baffled they had never seen anyone with all of these complex heart issues. They had seen some hearts with one or two issues, but never as complex as hers. They said it was one of the worst heart diseases they have ever seen and determined it was inoperable. No one gave up hope, we all stayed positive, there just had to be a way she would survive. Around the 35th week, Makayla had received a phone call from the cardiologist surgery team. They had come up with the last idea, let's get baby Tegan on the heart transplant list! That would solve all of Tegan's problems!
Birth story:
March 30, 2020 - 8:10am Tegan Dawn Jungo was born at 37weeks and 5 days via C Section, weighing 5lb 15oz and 17in. After birth on the way to the operation room Tegan's heart stopped beating and they did CPR on her for 15 minutes and almost called it when her heart started beating again! She is such a little fighter!! She quickly went into surgery and received temporary pacing wires in her chest. She is in the CVICU at OU Children’s hospital where her chest currently remains open right now due to swelling and complications with blood pressure. Those need to be improved in order to close the chest back up and place a more permanent pacemaker in the abdomen. Once stable and strong enough she will be transferred to St. Louis Children's hospital. From there they are hoping to get her added on the transplant list and wait for an available heart. We are praying and keeping our faith strong for our little fighter. God’s watching and she’s got this! She is SO strong and such a fighter. By the way the doctors are talking, this process could take months and months. Makayla will be next to Tegan this whole time. Makayla/Diego are still trying to figure out the commuting back and forth from Tulsa to OKC and the commuting from Tulsa to St. Louis. They also have to make sure they are maintaining their home in Tulsa, working, and traveling to go see Tegan. Currently with all of this Covid-19 stuff going on, the St. Louis Ronald McDonald house is closed. So once Tegan is up at St. Louis Children's hospital, the lodging will become an issue for Makayla & Diego. Hoping the Covid-19 issue is over by the time Tegan and Makayla/Diego get there.
Tegan's full complete diagnosis:
Heterotaxy, complete heart block, Left atrial isomerism, common atrium, balanced AV canal, Double outlet right ventricle with non committed VSD, Interrupted inferior vena cava, sever noncompaction cardiomyopathy, severe atrial stenosis, and mild pulmonary stenosis.
These funds would help with all travel expenses, pay medical bills that are 'in and out of network'. Help with any/extra household expenses while they are away. Thank you for any support you can provide. If you can't help with this fundraiser, could we ask of you, please say some extra prayers for baby Tegan and her momma and daddy. We will update this page with photos, and health updates, hopefully maybe every other day. Thank you