The most loved, beautiful, strong, happy little girl who lights up the lives of everyone she meets!
Eva has Cockayne Syndrome.
Cockayne Syndrome is a degenerative, premature-ageing condition that, sadly results in a very shortened life. It is caused by a fault in one of Eva’s genes and is extremely rare (approximately 1 in 250,000). For Eva, it is categorized by growth restriction, joint contractures, microcephaly, cataracts, hearing loss and feeding issues.
Eva has been blessed with the most amazing, loving parents (Dan & Alicia) who will not let this diagnosis define her! Yes, it has changed all of their lives in some very awful and confronting ways, however their lives (and ours) have been so blessed by this sweet natured, joyful, adorable girl. Dan and Leesh truly know what it means to live every day to the fullest and not take a moment for granted! They wish for Eva to have the most enjoyable, happy, fulfilled life possible and this is where WE CAN ALL HELP!!
We are dedicating this page to ‘The Adventures of Eva’. Our goal is to help Eva and her family be able to spend as much time together as possible and share in so many incredible experiences! Donations may also help with medical expenses, every day needs plus the chance of a sibling! A portion of funds will also be donated to Amy and Friends, a Cockayne Syndrome charity.
We are so grateful for any contribution, no matter the size! Let’s use this page not only to help The Jimmieson family financially but to show our love and support! X
You can read more about Eva's journey here.
Kelly (Alicia and Dan's good friend), Gemma (Alicia's sister) and Michael (Alicia and Dan's brother-in-law)
Brisbane / Sunshine Coast, Queensland
**Please note that Gemma be responsible for withdrawal of funds and sending these directly to Alicia and Dan (Go Fund Me requires that this information is stated here)
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- Althea Papinczak
- Scott Broadribb
- Sarah Cantarella
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