But to repeat a quote I recently heard, “Charlie eats ‘no’ for breakfast."
After having beaten lymphoma and leukemia, he is now preparing to face off with leukemia again. Since hearing the news of Charlie’s relapse, many people have been asking how they can help — here is how:
1. Pray - pray for Charlie, his mom Jennifer, dad Anthony, and brother William. Pray that they can endure what is to come and that Charlie can finally beat this monster. They believe that the love and prayers of so many people helped them through the first two times.
2. Send love - send supportive messages. Don’t expect immediate responses, but know that all the support that comes in from everyone, friends and strangers alike, is what keeps them going day to day.
- “Friends of Charlie Capalbo” Facebook page - https://www.facebook.com/groups/1607821702565790. To be added to the group, send a request to [email redacted].
- Email - [email redacted]
- Voicemail - [phone redacted]
3. Donate through GoFundMe. These years of illness have been financially devastating and another long term stay in Boston is daunting.
Please note that we are raising money starting at $265,000 because GoFundMe does not allow resetting the amount raised to zero. Those funds have been utilized during Charlie’s 2 previous cancer battles over the last 4 years to partially defray the family's enormous medical costs and living expenses - food, travel to/from Boston, mortgage, etc. As of this update, we have raised $30,000 ($295,000 - $265,000) for Charlie's 3rd battle. It is an amazing start, but we hope to do even better.
It all began in 2017, as Charlie was finishing his Fairfield Ludlowe High School varsity season as the goaltender. What started as a doctor’s visit to address prolonged flu-like symptoms, turned into a battle against a softball-sized tumor lodged between his heart and lung. Charlie, at the age of 18, was diagnosed with T Lymphoblastic Lymphoma (TLL). He underwent 36 months of intensive multi agent chemotherapy at Yale New Haven Children’s Hospital and never went back to high school. He went through extensive physical therapy and began climbing back to health and enjoying life again in the spring and summer of 2018. Charlie excitedly moved into Fairfield University as a freshman while being treated with maintenance chemotherapy.
Unfortunately, after just 4 weeks of school, in October 2018, it was discovered that he had new cancer cells in his spinal fluid. This time around, he was admitted at Boston Children’s Hospital where he would need high dose chemotherapy again, and ultimately a bone marrow transplant. Charlie’s mother, Jenny, moved to Boston for this second battle, while Anthony traveled the 150 miles to and from Boston every week, and sometimes three times a week. Due for some good news, the Capalbo family was thrilled to learn that Charlie’s brother, William (age 18 at the time), was eligible to be his bone marrow donor. February 4, 2019 was Charlie’s “new birthday”, and he received a full bone marrow transplant. The fight would not stop here, however, as Charlie had to work through intensive physical and occupational therapy to re-learn how to walk, feed himself, and perform basic functions of life.
Charlie was finally able to rejoin the world in November 2019. He had a celebratory holiday season and began the spring semester at Fairfield University in January 2020. Then, life drastically changed in the next few months with the coming of a worldwide pandemic.
And now another relapse.
Charlie and his parents, brother, family and friends have been warriors, wingmen, and unbelievably strong through the last 4 plus years. But he’s going to need an army of support to get through this one. COVID-19 is only making a difficult time worse. Charlie’s dad Anthony lost his job at the beginning of COVID, and is just getting his new real estate career off the ground. His mom, Jen, has been working per diem but now that is on hold.
They very hesitantly said I could re-issue this GoFundMe. They realize that COVID-19 has turned the world upside down for thousands and thousands of people. Lives have been tragically lost and families devastated. So many are currently suffering and they know that this is an especially challenging time for everyone. They are extremely grateful for any form of support that you can offer - it truly goes a long way for this incredible family.
Thank you for all of your support in the past. So many of you have followed Charlie’s story since the very beginning. He’s been an inspiration to all. He’s always been one to encourage other patients and share his story. He’s a great young man with so much to give the world.
Please share this message on social media and pass it along to your family and friends to increase the support for Charlie and his family.
For more information: [email redacted] or [phone redacted]
- robrert schweickart
- Doug Caliendo
- Deborah Pomfred
- lana welsh
- Alexander Gureyev
Organizer and beneficiary
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