I am starting a donation page for my best friend Kami Legits and her newborn Sweet Baby Maddex. This is his story:

Maddex Ace has been a fighter from day one. Kami's water broke on a Tuesday and the doctors did not catch the leak till Friday. Maddex entered the world at 3:21 a.m. Saturday March 3rd via a traumatic c-section. He was known in the hospital as the "baby hulk". He was born 8 lbs 1 oz and completely green, covered in muconium and struggling to breathe. With his fighting spirit and much support, he began to bounce back.

After the c-section delivery, Kami's blood levels dropped dramatically. After blood transfusions, they found internal bleeding that led to a very large hematoma. Within 24 hours after delivery Kami was back in surgery to remove the hematoma. They both spent long days recovering in the hospital. Since Kami was so weak, she could not travel up to the NICU to see Maddex those first very rough days; however, Kami is a wonderful, attentive mother being dilligent in pumping every 2 hours to give Maddex the best possible nutrients for his little body to heal. Maddex was the favorite NICU baby being so sweet and never really fussy or crying. He has such a precious little spirit content to get better. After 5 grueling days, they were finally reunited and able to go home.

After spending a few days at home trying to recover from the whirlwind delivery, Kami took Maddex in for his routine 1st week check-up. Testing in the hospital failed to find the very large tumor on his kidney. After getting the news, Kami frantically rushed to pack a bag and take him to the emergency room, knowing she would be flown to Denver Children's Hospital as soon as possible. Maddex's seemingly perfect little body was again poked and prodded with more failed attempts with IVs and testing before they were finally flown out.

Once in Denver, more IVs and testing on his sweet little body were done, and a plan was made to remove his kidney. After 4 long days of watching Maddex decline and struggle to keep food down, doctors removed his kidney only to find the tumor had already ruptured. Kidney removal is said to be the most painful surgery for babies. The pain was so unbearable they kept a full spinal block in for a few days following the surgery. The biopsy of the tumor was sent out for testing in hopes they could go home.

After surgery Maddex's body struggled to gain weight, keep food down, to regulate pain, and breathe. Doctors then started medication for thyroid issues as well as high blood pressure. Kami was feeding and comforting around the clock which in turn made her sick. She was forced to leave the hospital due to her own symptoms not being safe for him. Little Maddex was then cared for by his loving Grandma for the next few days.

April 8, 2022 the biopsy results came back with heartbreaking news. Maddex was diagnosed with a very rare and aggressive malignant cancer called Rhabdoid tumors. Unfortunately, it had spread to his adrenals, armpit, the base of his skull, and worst of all, his brain. There is no cure. It is terminal. Any treatments would only prolong his life to maybe 6 months and be painful and devastating to his little body. After Maddex spent all but a week of his life in the hospital hooked up to machines, Kami and Mason made the difficult decision to finally bring him home to be with family and to start Hospice care.

We are happy to have had Maddex home now for a few weeks. He has been surrounded by all the love a family can give. He has such a wonderful personality and a calming presence about him. Unfortunately, the cancer tumors are growing and spreading quickly. His little body is so ravaged by this awful unrelenting disease that we have seen a decline in his health and do not know how much longer we will have with this sweet angel baby.

Kami is the most amazing mother and gives Maddex all her love and around-the-clock care with his feedings and medications to try and keep him comfortable and happy. Kami is not able to work or do much else for herself. I know your loving donation and support will help her pay for medical expenses and help pay for all final burial/funeral expenses for this sweet baby when he becomes an angel.

Please donate what you are able and share Sweet Baby Maddex's story so others can show love and support. We pray for as much time as God will allow us to have this sweet baby with us.