Supporting the Coleman's

On Monday the 18th November, during an operation to remove the last of her CPAM disease, Luella devastatingly died.

With Mel and Jamie's blessing, we have set up this page to relieve some of the financial worry and so that they can just be together, with Flynn in this time.

Luella bella was their joy. The most beautiful, cheeky, radiant little girl. Their world.

There is absolutely nothing we can do, or say to ease the excruciating pain of losing their incredible warrior girl, but we can create the space for them to be in it, and we hope these funds raised by our community will be able to do just that.

About CPAM:

Congenital pulmonary airway malformation (CPAM) is a rare lung disorder that occurs when a baby's lung develops abnormally during pregnancy. Lulu’s CPAM was diagnosed antenatally, and she underwent her first lobectomy in July 2019.

We wanted to share some of Mel, her wonderful Mummy's own words, to provide some background into Luella's journey.

"Our little CPAM warrior is confirmed for surgery on 18th November.

Luella will have her second lobectomy at Kings College Hospital and it’s the big one, around half her right lung will be removed. While it’s been a heartbreaking decision to process, the risks of not removing the disease from her lungs far outweighs the alternative. This girl literally lights up our world every day and makes us so proud"

"CPAM is exceptionally rare and the condition involves the congenital development of cysts in the lung, which if left in place could cause respiratory issues and severe infection. Lulu’s case is attracting a lot of medical interest as it has presented in more than one lobe, so it is super rare."