Welcome to our fundraising campaign for my extraordinary son, Noa.

Noa, a resilient 3.5-year-old warrior, battles a rare disease affecting only 600 individuals worldwide. His strength inspires us daily.

A year after Noa's birth, we discovered his condition through an intense process of medical exams, tests, and countless hospital stays.

Noa’s condition stems from a spontaneous gene mutation impacting his brain, shaping every aspect of his life.

Noa faces rare and severe epilepsy, enduring various types of seizures. While his motor development faces significant challenges—currently very limited —we're committed to unlocking his full potential.

A beacon of hope lies in the unique aspect of his condition: the power of training to make a difference.

Although we receive valuable support from rehabilitation services, as devoted parents, we're determined to provide Noa with the best training, stimulation, as well as quality of life possible. This fundraiser is our mission to secure these crucial resources for my son.

We're focusing on comprehensive stimulation, including auditory experiences with headphones, visual stimuli through screens, and specialized communication training. These tools can significantly aid Noa's development.

Key Assets

Noa’s showing small responses to various therapies, fueling our optimism.

We're actively seeking a weighted blanket to enhance his comfort and well-being.

Additionally, we're exploring therapeutic animals with weight features to help soothe his nervous system during stressful periods.

Our search extends to specialized seating solutions, ensuring Noa can sit and relax comfortably and safely, despite his involuntary movements.

We're committed to maximizing every moment of Noa’s life, driven by unwavering faith, hope, and determination. The last two years has been in crises and we aim to stabilise the situation.

With heartfelt gratitude and unshakeable resolve.

Every donation, regardless of its magnitude, is a powerful contribution to Noa's journey. Your generosity, big or small, fuels our mission and makes a significant impact.

We kindly encourage you to share this fundraiser with your network if you believe it could contribute to our cause.