Support Malani's Fight Against FSGS Kidney Disease

Help Malani Fight FSGS Kidney Disease

On July 9, we rushed our precious 2-year-old daughter, Malani Dior Arose Desavieu, to UK Hospital after noticing her entire body was swollen and she had suddenly gained 7 pounds. After a series of extensive tests, she was diagnosed with **Nephrotic Syndrome**. Since then, our journey has been filled with numerous hospital visits, tests, and different medications, but nothing could prepare us for what came next.

A recent biopsy revealed that Malani has **Focal Segmental Glomerulosclerosis (FSGS)** with a “tip lesion” – one of the most aggressive forms of this kidney disease. Her kidneys are already damaged, and her kidney function has started declining . This means longer hospital stays and a tougher fight ahead.

At just 2 years old (born on February 13, 2022), Malani is the smartest, most confident, and outgoing little girl you could imagine, with a bit of sass that keeps everyone smiling. She shouldn’t have to go through this – no child should. But her hospital stays, needles, and treatments have already left her traumatized, and our battle is far from over.

As her mother, I’ve had to make the incredibly difficult decision to resign from my job so I can be by her side 24/7, making sure she gets the attention and care she needs. But this has put us in a tough financial situation. While Malani fights for her health, we still need to keep a roof over our heads and manage mounting medical bills.

We are asking for your help during this challenging time. Whether it’s through donations, sharing our story, or keeping us in your prayers, every bit counts. Your support will help us cover medical costs, keep up with our bills, and most importantly, give Malani the best possible care.

Thank you so much for being a part of Malani's journey to healing. We appreciate your kindness and generosity more than words can express.