Lula Gietz

20 months old

Diagnosis is extremely rare Chiari Malformation level 1 and papilledema.

The doctors at Wolfson Jax performed a ton of tests and can’t figure out why and where the pressure is coming from. Our girl has an extremely rare case that left us with nothing but more questions.

We are heading to Bascom Palmer ER in the next 24-48 hours where there are two specialists who are in-network and have extensive experience in both of her diagnoses.

We will most likely be there for a few weeks, leaving us out of work and the bills piling up.