UPDATE:

Ky was admitted back to Boston Childrens Hospital on monday and had surgery to place a G-tube. things went good and as expected. first night was good but he was very very sore on Tuesday the next day. they upped his feeds Tuesday night and today (Wednesday) he has been throwing up all day. he isnt tolerating feeds. he was supposed to go home today and now we cant until they can get him to stop puking and tolerate feeds again. with that, his dad has again needed to take all this time off of work. last time it took him 3 days to tolerate feeds and we are only on day one of his goal feeds and its not going well. his phosphorus was also a little low which was his sign of refeeding syndrome last time, so we also need to keep taking more blood and rechecking his electrolytes. in the last 3 days Ky has taken NO foods at all by mouth and almost no fluids by mouth. i am frustrated for him and overwhelmed and trying to focus on my son feeling better but its hard with the stress of piling bills and having to buy food for here and for my other kids at home. we cant afford Dad to keep missing work but Ky is our priority. Ky is still in alot of pain, he can hardly walk and needs assistance just to sit up. im asking anyone to please reshare our go fund me as we ask for help till Ky can leave the hospital. thank you to everyone who donated before! i appreciate everyone who has or can help. even if just sharing i cant thank you enough!

My 7-year-old son, Kyran, has been admitted to Boston Children's Hospital for the last 5 days and will be here till at least mid-next week, or longer depending on if he's getting the surgery now or in the next week or two. Dad has had to take all this time off work and has no PTO left. He didn't qualify for FMLA.

Ky has an eating disorder called ARFID, which is avoidant/restrictive food intake disorder. He hates food and doesn't eat nearly enough by mouth, hardly at all, to the point he feels sick all the time and has stomach pains. He's vitamin and nutrient deficient. He's basically disgusted with food and no amount of therapy he has done has helped. He's actually gotten worse. So BCH admitted him for inpatient therapy. They saw it didn't work, so now he has a feeding tube in his nose called an NG tube and will get a more permanent one, the G tube, soon so he can get supplemental feeds while we do a ton of therapy and try to get him to eat more/enough by mouth. He's already lost 3 lbs since being here. His body is fighting hard to adjust to the new feeds and getting used to the tube, that he spiked a fever, can't stop vomiting, and overall feels awful. My poor sweet boy has gone so long without the proper nutrients, it's now making him sick. Something called refeeding syndrome. We are taking it slow to try and adjust, but it's a long, slow process to get him to be able to tolerate feeds and finally gain weight and get all his vitamins, nutrients, and minerals to where they should be.

While this has been incredibly hard on all of us, we are also struggling to get the gas for Dad and siblings to come visit as we are over an hour away, food from the cafe for myself, and food for at home for my other kids. With rent due, 2 car payments due, and so many other bills, we are struggling to find a way out while Dad stays home with our other 2 kids and I stay here with our son who is getting the care he desperately needs. If you can't donate, please share! Thank you to all who will help out and share his story.

Please bring awareness to this awful condition! Watching your child suffer and starve themselves is something I never wish on any parent! It's lifelong, so he will struggle with food for the rest of his life.