Support Krystian's Recovery and Future Surgeries

Dear Friends and all who dont know our family history.

I am mom of 9 year old amazing boy who born with TWIST 1 gene modification cause one of his skull fuse closed.

We made decision to perform first cranioctomy, head reconstruction when Krystian had 7 months. The surgery took 10 hours. With help of great specialist from Luries Children Hospital my son can see, hear and there is no risk of intercranial pressure which can cause meningitis and his brain can have a space to grow.

After that my son went through several small serguries- tonsillectomy ( severe sleep apnea), ear tubes to improve his hearing,dental extraction.

Recently, on july 12th of July, my son went through another major cranial remodelig to cover large open spaces in his skull so the brain can be protected. The surgery took 8 hours since doctor had to use part of his rib bones to cover openings.

The surgery went excellent. My son is recovering at home with me.

As single mom, currently I stop working to stay home and help my son with recovery time help him remove trauma connected with surgery and make ssure that my son bones heal, make Krystian stronger so he can be ready to start his 4th grade, kindly ask for support us.

There are more surgeries in front of my son. After bones will heal my son expecting midface distraction ( including forehead, nose, chicks bones and cleft palate) so he can breath better and Plastic surgery for chest deformation.

Proud of my son and thank you so much for any donation.