Born with Prader-Willi syndrome, Kacey has fought for every small victory. Growth hormone treatment is helping him gain strength — and your support can help him keep going.

Kacey is my 9-month-old nephew and he was born with Prader-Willi syndrome, a rare genetic disorder that affects his brain, muscles, and development. Since birth, he has struggled with severe hypotonia, leaving him unable to feed himself or move like other babies. He also has hip dysplasia, which makes movement even more challenging, and he spent months hospitalized before coming home dependent on a feeding tube just to survive.

Every small movement takes enormous effort for Kacey. Lifting his head, holding his body, or trying to play exhausts him far faster than a typical baby. His days are filled with medical appointments, physiotherapy, and daily therapies, all to help him reach milestones most children achieve naturally.

Growth hormone treatment has given our family hope. Since starting it, Kacey is gaining strength and making progress we never thought possible. While it isn’t a cure, it is giving him a real chance to grow, move, and experience childhood.

This life-changing treatment costs $2,000 every month and is not covered. Our family cannot afford this long-term, and stopping now would mean losing the progress Kacey has fought so hard to make.

To help raise funds, a group of close friends and I are doing a sponsored walk up Snowdonia on March 8th. Every step we take is to support Kacey’s treatment and help him grow stronger.

From the bottom of our hearts, we are asking for your help so Kacey can continue his treatment and have the chance to grow, play, and live a fuller life. Every donation helps keep hope alive.

Thank you for your support, Katie x

And From my Walking Cheerleader's,

Sammy, Jilly & Daniel.