Support Hailey's Journey for Improved Quality of Life

Hailey Hinds was born with two rare Genetic Disorders known as Cri-du-chat Syndrome (5p-) as well as a 10p duplication. These rare disorders effect her entire body in very critical ways.

Almost 10 years ago, Hailey was born into this world prematurely. Little did anyone know that Hailey had these rare genetic syndromes and that it would change the trajectory of our lives. She was given 1 year to live based on the severity and complexity of her medical issues. We were living life day to day and celebrating her every milestones. She is now almost 10! Life is SO precious!!!!

Hailey does not have the ability to walk, sit up, stand or crawl on her own. She relies on daily physical therapy, OT, exercises and requires quite a bit of medical equipment to keep her safe and build strength. She is also non-verbal, but she has such an infectious bubbly personality and has her own unique way of communicating with everyone through her love and laughter.

It has been a real struggle to get some much needed things approved for Hailey as she is now getting older, heavier and harder to lift and transport safely. Lifting Hailey multiple times per day has had a hard impact physically on her mother, Melanie who is a single parent and Hailey's primary caregiver. A lot of approvals for the things Hailey needs has been denied multiple times including social security benefits as well as a much needed handicapped accessible bathroom and a wheelchair van. With your help and generous donations, Hailey's family is in need of these things to help make Hailey's quality of life safer, better and more easy to transport to all of her medical and hospital appointments.

Thank you for anything you can do,

Hailey’s Aunt Lindsay