Support Carrie's Heart Transplant Journey

My name is Carrie Johnson, and I'm reaching out for financial assistance as I navigate a challenging medical journey. I’ve been diagnosed with Congestive Heart Failure (CHF) with a severely reduced Ejection Fraction (EF) of 17%. Despite having an ICD implanted for two years and ongoing treatment, I continue to face severe symptoms and frequent hospitalizations.

I applied for SSI in 2021 but was denied twice, with the reason being that I am considered able to work a desk job. Medicaid also denied me due to my age and lack of dependents. I now face a long wait for a hearing to appeal for disability and Medicaid coverage, which is critical for my heart transplant.

I am in the process of leaving my job because I can no longer perform my duties, and my medical needs far exceed my current financial capabilities. The funds I am seeking through this GoFundMe are intended to cover medical and living expenses while I wait for a potential approval of disability benefits. I am unable to work while awaiting disabilities decision due to an automatic denial. A catch 22 if you will.

My most recent right heart catheterization has shown that, despite being on a high dose of Milrinone and eight other prescription medications, my cardiac output has severely decreased. This means that my heart can no longer pump enough blood to meet the demands of my body. It has also shown that I have elevated filling pressures. Consequently, I have been informed that they need to move forward with treatment (heart transplant). It's extremely difficult for me to do basic things like walking, getting ready or even just sleeping without experiencing shortness of breath, swelling in my legs or just overall discomfort. My quality of life has deteriorated. In order to receive the help I need, I require assistance. I want to live, and it is terrifying to even consider my life coming to an end due to a cruel and indifferent healthcare system.

The goal I’ve set is a modest attempt to bridge the gap in my financial needs. Any support, whether through donations or positive thoughts, is deeply appreciated.

Peace and love,