Support Allie's Fight Against Rare Kidney Disease

My name is Barbara Ciancia. I am the mom to 7. One of my daughters, Allie, was diagnosed with FSGS—secondary to Nephrotic Syndrome, a rare non curable kidney disease, when she was 5. Being her disease is so rare, very few doctors know how to treat her.

Allie Had been doing well for some time, when nearly a year ago she relapsed. The first sign of a relapse is severe swelling. What files is an extended hospital stay to get everything under control. Unfortunately this last relapse has lasted nearly a year.

Her current nephrologist I has hit a brick wall with how to treat her. He (and many other doctors) referred her to a doctor who specializes in FSGS. He is in NY. We met with him in person once and virtual once. The only problem is he doesn’t take insurance, he’s cash/card only. He’s a phenomenal doctor and we’d like for her to be able to see him, at least until she hits remission.

Due to being in and out of the hospital, it’s hard for her to work. I help out as much as I can but we have a limited income as well.

Please consider donating to my girl so she can get the treatment she so desperately needs. Thank you from the bottom of our hearts.