In January of this year, Mia was diagnosed with an incurable genetic disease called (Infantile) Tay-Sachs. It is a rare neuro-degenerative disease caused by the lack of HEX-A, a vital enzyme, which helps to break down a lipid called GM2 gangliosides. Without HEX-A, the GM2 builds up to toxic levels within the central nervous system (CNS), leading to the progressive death of nerve cells within the CNS.

Tay-Sachs eventually leads to blindness, deafness, and paralysis. Children with this disease usually pass away between 3-5 years of age. There is currently no cure and no approved therapies.

Mia's family wish to make as many special memories as they can and provide Mia with the best quality of life possible. They appreciate the support of their family, friends, and community, and thank you very much.