Summers NF2 journey!

Hello my name is Jill Golding. I have an amazing granddaughter Summer who has been diagnosed with neurofibromatosis type 2 (NF2) this is an incurable genetic disorder. She has benign tumours growing on lots of nerve endings in her body. She has already had a brain operation in 2017 and recently has had surgery to fit a cochlear implant, due to tumours growing on her hearing nerves resulting in deafness. She has recently been informed she needs to start avastin treatment (chemotherapy) this is to try and shrink the tumours to give her the best outcome in life.

I would love to raise funds for her to be able to visit Disney land Paris with her younger brother and mum before her life changing treatment starts. I would be grateful for any donations big or small. Thank you Summers nanny Jill xx