I am 22 years old and live in Playas de Rosarito, Mexico.

For the past 5 years, I have been fighting severe Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and dysautonomia.

At first, the symptoms slowly limited my life, but two years ago I became completely bedridden. Since then, I have depended on a feeding tube to survive, as I can no longer eat normally.

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My reality today

My condition worsens every single day. I am at the most severe level of ME/CFS, living in an extreme state of overload where even breathing, moving, or trying to communicate triggers painful crises.

• I weigh only 30 kg (66 lbs), leaving me extremely weak and fragile.

• Every small movement, even the urge to urinate, worsens my condition.

• I suffer from dystonias that suffocate me, constant tics, spasms, and akathisia that make me lose all control of my body.

• My hypersensitivity is so extreme that I cannot tolerate human contact, noise, light, or even simple external stimuli without collapsing.

• My muscles are rigid and tense, yet wasted and thin from lack of movement.

• I constantly produce secretions and often need help just to move an arm.

• I am trapped in a chronic state where everything I do makes me worse.

Even writing this drains me, but I do it because I fear becoming completely cut off from communication. My phone is my only defense to share what I’m going through.

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What I need to stay alive

My only source of nutrition is the medical formula Peptamen 1.5.

I also urgently need essential supplies that my family can no longer afford:

• Syringes and feeding tubes.

• Electrolytes and supplements such as potassium, magnesium, thiamine, and phosphorus.

• Basic caregiving support from someone trained to move me without making me worse.

I also dream of accessing advanced therapies that could bring me some relief, such as non-invasive vagal nerve stimulation, rTMS, hyperbaric oxygen therapy, and metabolic support. But right now, the most urgent need is simply to cover the basics that keep me alive.

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Why I’m asking for your help

My family has done everything they can, but they can no longer cover the costs.

I depend 100% on others for everything, and without resources my situation is extremely vulnerable.

That is why today I am asking for your help:

• Your donation allows me to keep receiving the medical formula and vital supplies I need.

• Your support gives me a chance at a little more stability and dignity.

• Sharing this campaign helps reach more people who may be able to help.

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Thank you

I know these are difficult times for everyone, but every donation, every gesture, and every share makes a huge difference in my life.

Thank you from the bottom of my heart for reading my story, for your empathy, and for your support.

With your help, I can keep fighting.

Stefan