
Stand by the Nash Family in Crisis
Spende geschützt
The family of Alex, Jimmy, Tristan, and Eloise Nash is starting this go fund me to help with any and all expenses related to sweet Eloise and to help in anyway so the family does not have to worry about anything but their precious baby girl. All funds will go straight to Alex and Jimmy. We love you Eloise Amanda!!!!!
Donations can also be made to Belgrade State Bank under "Eloise Nash Benefit Account".
Sunday, December 1st: Eloise was very sick and severely dehydrated. We took her to Parkland ER and they said to follow up with her pedatrician on Tuesday.
Tuesday, December 3rd: Eloise went to see her primary doctor and we discussed her ongoing issues with her eyes and weak left side. He put in a referral to Children's neurology because he suspected she may have had a minor stroke.
Friday, December 6th: we see Eloise's neurologist and she is concerned Eloise may have Cerebral Palsy. We head to Children's ER for a CT scan. That's when we received news that turned our world upside down: our baby had a brain tumor on her brainstem.
Saturday, December 7th we recieved the worst news of our lives: "Looking at the MRI, we think it's a diffuse midline glioma (DIPG/DMG) which are very difficult to treat and you're looking at maybe a year to a year and half before she dies."
Monday, December 9th Eloise had a biopsy done of her tumor and they were able to get a small tissue sample for research purposes to help other children.
Thursday, December 19th we had a zoom visit with her neuro oncologist, Dr Cluster. He is still waiting on some genetic testing (takes 21 days from the biopsy for a full report), but he is 99% sure she has a low grade 1 pilocytic astrocytoma (in other words, a slow "good acting" tumor.) This type has a great prognosis. He said there is one genetic mutation that is aggressive but under a microscope stain she was negative for that so he thinks she won't have that kind. And once we get it all back, we will start treatment either chemotherapy or targeted therapy depending on the mutation.
I'm still not sure how to act. We went from thinking we may only have our Eloise for a year if we were lucky to she most likely will live a good, long life.
All I can say is thank you to everyone for praying for us, supporting us, fundraising for us, just everything!! I know God heard these prayers!! Thank you, thank you, thank you!!! And the doctors have been nothing short of amazing. I cannot recommend Children's Hospital enough to anyone.
We still have a long road ahead of us, so please keep us in your prayers these next coming months ❤️
Updates: We got to come home last night! We stopped at Texas Roadhouse and Eloise wanted all the rolls and butter to herself, but she did give me one roll at least and even held it out for me to grab and eat
She slept in till 9:30 this morning, got a good bath and breakfast, and now she's playing with her toys she missed.
Next appointments are Monday with the eye doctor at children's and her neurology doctor.
Updates: Just talked to the neurosurgeon and Eloise did great during surgery. Just waiting on her to recover a bit and then we'll get to see her. We should know the results of the biopsy in the next 1 to 3 weeks and go from there.
Keep those prayers, vibes, and loves coming ❤️
Updates: Yesterday, a CT scan showed a brain tumor and an MRI today confirmed it, which explains her not walking, being unbalanced, having a weaker left side, and eye issues. This kind of tumor is difficult to treat. She is having a biopsy in the next couple of days and hopefully it will give us a better idea of what course of treatment to take.
This little girl is our world and she is so, so strong. Even the doctors and nurses at Children's have said she is doing so great with what she has going on. I know all things are possible through Jesus Christ, thinking positively, and being an advocate for our baby. Be thinking of us as we navigate something no parents should ever have to navigate through ❤️
Update: August 18th, 2025 We met with Dr. Perkins about starting proton radiation for Eloise. Tomorrow morning she will do a simulation to get everything mapped out for when she starts treatment. She may start as early as Thursday or Friday, but if not, she will start bright and early Monday morning. This will be 5 days a week (M-F) for about 6 weeks. She will have several scans to check the progress and be sedated.
Now for the hard part. Her shunt surgery went well and it was able to relieve some pressure, but she is still about the same. This radiation therapy is basically Eloise's best and last chance at shrinking this tumor once and for all. Because her low grade glioma isn't wanting to behave like one and respond to the chemotherapy regimen she was on, they aren't sure any other chemotherapy treatments would work. They are also worried about it affecting more vital functions such as her breathing. They also aren't sure how the tumor will respond to the radiation because they've never had a patient like Eloise before. And, unfortunately, even benign tumors can have bad outcomes. However, Dr. Perkins said they wouldn't try this if they didn't think there was a chance this would work.
So, I humbly ask everyone, please pray for a miracle. Please pray the radiation shrinks this tumor once and for all. Please pray Eloise is healed wholly and fully. And please pray we get to keep our sweet Eloweezus earthside with us for a long, long time.
Organisator und Spendenbegünstigter
Courtney Laramore
Organisator
Caledonia, MO
Alex Nash
Spendenbegünstigte