Ajudar príncipe Dinis

Dinis Hello, my name is Dinis Semanas, best known as “Semanas”, which, in English, means “weeks” because that's how people call me in hospitals. I am two and a half years old. I was born with a congenital transposition of the great vessels (reversed ventricles) and later my mother discovered the rest of my problems. When I was 6 months old, I was not able to raise my head, nor I had strength in my limbs. I choked when drinking milk because it was too liquid. Then, my mother started to thickener it, for me to be able to tolerate oral feeding. I started therapy at the hospital in my residence area, during about 4 months, but doctors decided to give up on me and sent me away, justifying that they did not know if it was worth it to continue, because it was uncertain how long my heart could bear this effort, and they need to study my case in order to find other solutions. Later my mother was told about the need of carry out a genetic study because there were some suspicions about a potential genetic fault to be responsible for all my symptoms: the delay of the development, the fact of not knowing how to feed, the lack of communication through my eyes, the indifference to the touch and contact with the others… My mother also began to notice that I was not growing at the normal rhythm as other children. My feet, hands, ears and nose were not developing and were smaller compared to the size of my body. Now I´m doing some therapies and physiotherapy and I still have a therapist who comes home once a week, to work with me. I do not accept mouth feeding other than the milk bottle milk thickened with instant cereal Cerelac. I also cannot poop without medication. My mother is giving me some food supplement because I’m not gaining enough weight. I take medication to sleep because I get very excited and spend a lot of time screaming and crying until falling asleep. I also do the medication for my little