Hi, my name is Nicole. I am starting this fundraiser to help my daughter and her young family through the most difficult time of their lives.

Shannon and Sully were overjoyed to learn they were expecting a second little boy. Silas was thrilled to be a big brother, and the pregnancy was going wonderfully.

During their 20-week anatomy scan, they noticed that the baby's long bones (arms and legs) were measuring short, and they determined that he would be born with a type of dwarfism, but they needed further testing to determine the specific type. Three weeks later, they received the devastating news that Shiloh had lethal Thanatophoric Skeletal Dysplasia, an extremely rare type of dwarfism. This means that his arms, legs, and chest are severely underdeveloped. Because of how tiny his chest is, he will not be able to generate enough lung tissue to survive outside of the womb.

This has been devastating, and they are doing everything possible to prepare. They have talked to all the specialists and done all they can. Shannon and Sully have been putting in as many hours as they can to try to save for their financial needs after Shiloh's birth and his passing. They are also working hard to be present, wonderful parents for Silas, and trying to maintain their mental health.

Shannon and Sully work non-traditional jobs, so maternity leave or PTO isn't an option. They both work in the service industry, so they have no income when they aren't at work.

Shiloh is due in the coming weeks, and although he will only be with us for such a short time, he is loved beyond measure.

I hope to raise some money to help them cover expenses for their needs in the time leading up to and following Shiloh's birth. They are going to need some time together as a family and away from work to grieve and process this unimaginable loss.

Thank you in advance for any help that you can offer.