Care Package Fundraiser

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75 donors
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£1,575 raised of £5K

Care Package Fundraiser

Hi! My name is Roshana and I was recently diagnosed with scoliosis in 2022. Scoliosis is an abnormal curvature of the spine resulting in the spine to curve in either a C shape or a Shape. This condition is a very rare condition and to date professionals are still unsure of the diagnosis . This condition can be invisible to others or visible depending on how much the curve has processed which is why it’s called an invisible disability . The only way to prevent the curve from continuing is to have surgery which involves a metal rod being put into my back to straighten the spine ,however this is not a guaranteed fix and the curve could come back . With this condition comes a lot of pain and discomfort and sadly this will be life long as the surgery is not a cure for pain. living with scoliosis one of my coping mechanisms was to share my journey with others and raise awareness to others by helping others identify if they had scoliosis at an early age, what the signs could be, the process of surgery and coping strategies that helped me. unfortunately I caught my scoliosis quite late which meant the only option I had was surgery, if me or my mum would have known about this condition sooner and the signs to look out for we may have been able to try alternative options like physio or a brace to try and put the spine back into place. There is very minimal information in GPS surgery, health visit, or schools to educate us about conditions to look out for especially in adolescents which brings me to why I want to do more so that others don’t have to face what I face when we are meant to be enjoying life . The reason why I decided to create a GoFundMe was so that I could request support with funding to help raise awareness by creating leaflets to distribute in schools, clinics and GPs and out in the community and to also creat care packages for children and teenagers that will or have had surgery. When speaking to alot of other people who had scoliosis they highlighted that not much support was out there for them and that financially parents were struggling to support their children with basic essentials. So I thought what a great idea for me to be able to raise funds to provide essential items that we may need before and after surgery to make us feel more at ease. I have started my fundraising journey already with who I applied for a grant to help support my vision and was accepted which I am externally greatful that they saw my vision and this has just pushed me even more to go further which is why I need your support. I would really appreciate any donations to help so many people who have this condition and who don’t get the answers we need. Scoliosis effects so many people and no one should suffer in silence. thank you for taking your time to read this and please share with all we need to beat this condition!

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