Drake and Vivian are two precious children who are living with a devastating, terminal rare disease that currently has no treatment. NKH is so lethal 85% of children do not see their first birthday. Right now there is a gene therapy treatment being manufactured that could save their lives, and we need the final funding to pay for the trial prepared to happen later this year at MUSC in South Carolina.

The manufactures are working around the clock to develop the drug, the parents are fighting tirelessly to get the necessary approvals for the therapy, and a team of doctors are prepped and ready for the trial. All that stand between this family and this life saving gene therapy is the final funding. Please, rally with the community to surround Drake and Vivian and help them reach this treatment.

More information can be found at DrakeRaydenFoundation.com. Help us bring this therapy to a disease that has no options, and to a brother and sister desperately fighting to make it to the cure.