santino hasn't had an easy start to life in the 2 years he’s been here, he was born with his cord wrapped tightly around his neck twice. The first 6 minutes of his life he wasn’t breathing, on the 7th minute with oxygen support he let out his first cry. He didn’t accept any milk/bottle for the first 12 hour of his life which only led onto further complications around feeding and ended up with an ng feed due to failure to thrive and malnutrition which he had gtube surgery for in October 25. Due to him being unsafe swallow and has afrid anyway. Santino is 3 next month and is He has no concept of the world around him, no understanding of anything. He didn’t start sitting up on his own until just before his second birthday although he still struggles too now and has an abnormal posture requiring wheelchair services. He still struggles with a significant head lag. He’s also non verbal has significant hypotonia & hypermobilty For the first year of his life we was ignored by professionals even though it was stressed how behind he was and what was happening. It wasn’t until he had his 1 year review with the health visitor who was a different one to who who had been seeing where she referred him to all relevent services and now has a high amount of professionals involved in his care. All this has led to where we are today he has multiple diagnosis that range from neurological condition and neurogenetic condition that we are currently waiting on his genetics to come back to tell us which one. He’s also a SEN child so makes everything alot harder. He relies on sound rather than sight. There is alot more diagnosis inbetween these. he’s significantly complex medically and additionally and all the Inbetweens. he has specialist medical equipment. he needs ground floor living, wetroom and bedroom from his ot & disability team. but we need to raise another 5k right now we are struggling to raise the funds needed. As a family we don’t ask for help we manage by but this time we are going to have to, as you can imagine having a disabled child comes with expensive price tags regular and constant hospital appointments out of our area, therapies , equipment and daily living takes up all the money we have, so once the build is complete we need to get things like flooring, furniture, safety equipment etc ones that I’ve been told he needs but won’t be provided by the nhs, he’s getting bigger and heavier and are now struggling to carry him around to where he has to go upstairs shower etc that’s why he needs his ground floor adaptive living for his equipment can be used and I won’t have to carry him as much.

hes due to have more surgeries for other problems in the next coming months so additional costs. so Any help big or small is appreciated towards the rest of his build even just a share will mean the world to us