The fundraiser is closed! Baby Kirill won a lottery and will get the drug for free. Allthe money collected here will go to Kirill’s parents as they constantly need support to buy new equipment or medicines.
On parents behalf with all my heart I thank you all for your donations and support. Much love, Helena
My name is Helena Mankowska and I am a volunteer for little Kirill’s fundraiser campaign.
Kirill suffers from Spinal Muscular Atrophy (SMA), he’s only 18 months old and needs to collect money for the most expensive treatment in the whole world ZOLGENSMA that cost 2.4m $. This disease can lead to death. We are running out of time. Please help this little one live and improve basic life functions like breathing, eating and maybe sitting up straight.
His parents are desperate. It breaks my heart when I think of how they must be worrying every day if he’s going to make it to the next one, also when I see him laying down, connected to machines to breathe and being fed.
I simply love him since I met him three months ago and since then can’t stop thinking every day how to help him more. That’s why I have created this account hoping that I will find beautiful souls that will open their hearts and donate.
On behalf of the parents thank you.