We are incredibly thankful for all your help and feel totally blessed that we are able to give our little lady some new wheels for her to live her days more independently. It will be truly life changing for her, and for us as a family. THANK YOU SO MUCH for helping us to reach our target and for all the ways you got us there - your generous donations (over 350 incredible people in 7 days!), charity events, work tombola's, auctions, sharing our page (shared over 600 times!) and helping to spread the word - you are all awesome. We cannot thank you enough.
We have now reached our target and look forward to ordering her chair asap! You have our word that any surplus funds raised from this point will be kept aside to help maintain the power chair (annual MOT, damage repair, replacing consumables i.e. wheels and for the new chair bases that will be needed as Rosie grows - up to 5 chairs in the next 10 years!) to ensure she stays mobile, or other tools and equipment to help Rosie have a better quality of life. That's a promise.
This is Rosie, a playful little four year old girl who loves adventure and making friends.
Rosie was born with a severe muscular dystrophy called Nemaline Rod Myopathy, a condition which affects every single muscle in her body from head to toe.
Rosie is unable to walk and has been enjoying using a Wizzybug powerchair which was loaned to us from Designability when she was two years old. ￼
It gives her freedom and the ability to socialise on her terms. She may have weak muscles, but she has a strong will and big ambitions.
She asks to go in the wizzybug every day and at every opportunity - it means the world to her and has enriched her life beyond words. ￼
Sadly she has now outgrown this powerchair and we desperately need a replacement. ￼
As parents, it is the hardest thing to watch your child not be able to make friends and join in games due to physical limitations. ￼
Of all the hardships Rosie has faced in her short life, the disappointment and frustration that follows her anticipation and excitement of meeting up with her friends is gut-wrenching.
Without a powerchair she would be very isolated. ￼
Please help us to provide her with one of the most amazing gifts you can give to a child. Something that will enable her to have fun, be independent but also join in, to get the most out of her time on this planet, to simply be happy. ￼
Due to the huge costs involved in buying a powerchair we have investigated and trialed many and believe the Permobil Koala Miniflex will give Rosie everything she needs for the next few years. ￼
Its small size, speed and maneuverability makes it the best chair for exploring and inquisitive little people.
It's quick and powerful enough to get over small obstacles and to go out for long countryside walks (something Rosie has always wanted to do but never been able to) it could take her places and allow her to do things that until now shes only been able to do in her mind.
It can also go up and down so she can have total flexibility no matter what the situation and who she is with.
Having real independence means more than words could ever explain when you're imprisoned in a body that struggles to move and breathe.
Please help us in any way you can to make this dream a reality for Rosie. This chair wont just be a powerchair, it'll be part of every memory, every smile and key to her fulfilling her potential.
Thank you so much in advance for any help you can offer - a financial gift, arranging your own fundraiser or simply a share of this page - whatever you can do to help we will truly appreciate x x x
If you'd like to know more about our brave little girl and how she continues to defy the odds, you can read more here: www.myweakmuscles.com
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