Robins MSA fund

Hi, my name is Robin I am married to Karen and have a daughter and 2 grandchildren (6&5) I have MSA (Multiple System Atrophy). This is a rare disease which most of you probably have never heard about it before today. There is no cure for this and no medication to slow it down.

I was told by the specialist (end of February) that i had MSA she told me there was not much information about it as it was so rare and that there is no cure, she told me that my speech will go, the ability to swallow, my muscles will stop working and I will end up bed bound, and loads of other things. As you can imagine I didn’t know what to say or do, we spend a few week’s as a family digesting this reading up on the MSA web site. I decided I wanted to make as many memories as I could with my family. But sadly my ability to walk has deteriorated which has stopped me going out so much as I get tired very quickly. I have a normal wheelchair but Karen is finding this more of a struggle pushing me around and i try to walk as much as possible but it is tiring. An electric wheelchair would help so much but they are so expensive.

Hi I am Karen and if you know me well you will know how hard this is for me asking you to help but now I really do need it so we can keep Robin active and making memories for as long as we can.

Thank you all from the bottom of our hearts for reading this if you can please make a small donation to help us I will be forever great full.

Robin, Karen, Zara, F&M x