Hi my name is Lisa and my beautiful girl is Raven aka Floss we recently found out our precious girl has a rare progessive diesese called sanfilipo syndrome. Up until this diagnosis we was led to believe she had autism. Now as a family we are facing impossible times currently there is no cure or treatment for sanfilipo syndrome . The money we are asking for from this gofundme is to help secure a future whereas we own our own home can provide stabilty to Ravens care, make as many memories as we possibly can. We currently live in private rental and unfortunately we can not have all the adaptions Raven will need while not owning our own home.. I dont ask for help easily and I appreciate we are all living in really hard times so anything small or large is massively appreciated beyond words .

We know that it is a big ask, but please donate if you are able, and please share Raven’s story and GoFundMe page everywhere you can to help raise the awareness and funds needed that coild help save Raven' s life.

As a family we will be fundraising and advocating for all families going through what we are. We want as much awareness of this cruel disease spead far and wide.

We understand if you're not in a position to donate but please please share our beautiful girls story and keep on sharing ❤️