GS2 take on 100 miles over 3 days, June 2025!

In June 2025, a group of 100 volunteers, including a group of us from GS2, will attempt to walk the entire length of the Jurassic Coast, to help raise funds in support of clinical research for Spinal Muscular Atrophy.

Spinal Muscular Atrophy (SMA) is a genetic, neuromuscular condition that causes muscle weakness and wastage due to a loss of motor neurons. Each year about 1 in 10,000 children are born with the condition and before 2016, without treatment, most children with SMA Type 1 were expected to live for less than two years. Today, early diagnosis can significantly abate the impacts of SMA, however, more awareness is needed to recognise the symptoms and clinical research is essential to improve quality of life for those affected.

To increase awareness of the condition and to highlight the inaccessibility of UK rural walkways, the team also aim to transport Stan, an individual who has SMA Type 3, a variant of the condition that onsets later in life. Stan will be transported in a custom-built wheelchair, and where necessary, lifted over walls and parts of the route that just don’t allow those with restricted mobility to access – a truly symbolic journey!

* All money raised goes to fund clinical research to improve the lives of those affected by Spinal Muscular Atrophy (SMA) *

Rally Round Rupert charity was set up by George Mosey and his wife, Charlie, in early 2023 to help others living with SMA after their son, Rupert, was diagnosed with SMA Type 1 (the most serious type of the condition) when he was just 8 weeks old. His diagnosis was delayed because doctors did not identify his symptoms, but at 11 weeks old he was given life saving gene therapy on the NHS. He has to work incredibly hard every day, with daily physio and chest exercises to gain strength and mobility. The cause is particularly close to GS2’s heart with Josh’s step son, Oscar, being personally affected by the most severe type (Type 1).

To learn more about SMA you can follow Rupert’s journey on Instagram, @rallyroundrupert.

Thank you for all your support!