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Update on Lena’s Journey
First, thank you to everyone who has donated, shared, prayed, and checked in on my sister Lena. Your support truly means more than words can express.
We want to share an update on Lena’s condition and the progress she has made. Lena is living with neurosarcoidosis, a rare autoimmune disease that affects the nervous system, including the brain. This condition causes inflammation that interferes with how the brain communicates with the rest of the body. For Lena, this has resulted in vision loss, limited mobility, and difficulty standing or walking for long periods of time.
The good news is that Lena is under the care of an incredible team of neurological specialists at Emory Hospital. After extensive testing, they have been able to get her on the right combination of medications to help manage the disease. While this has helped stabilize some symptoms, Lena still requires ongoing testing, frequent doctor visits, and regular MRIs to monitor her condition.
At this time, doctors do not believe her vision will return, but we remain hopeful and continue to lean on faith and optimism every day.
Lena is currently living with family members who help care for her. Despite her limitations, she does her best to stay active in safe ways. She spends time walking up and down the driveway when she can, helps with laundry, and finds comfort being around the family dogs. Her strength and determination inspire us daily.
We still have a long way to go. Funds raised are being used to help cover medical insurance costs, medications, and ongoing medical care, all of which are essential to maintaining Lena’s quality of life.
If you are able to continue supporting, sharing this fundraiser, or keeping Lena in your prayers, we would be deeply grateful. Every contribution, no matter the size, makes a difference.
Thank you for standing with Lena and our family during this journey.
LENA is not just a mom, she’s our SUPERHERO!!!
After losing her job on March 2025 of 11 years at the CDC-Atlanta, GA, she started experiencing life altering symptoms. Our family came together and admitted her at Emory Hospital. During an intense 1 month stay at two different Emory Hospitals, she underwent 3 spinal taps, lung and a carefully executed brain biopsy. Brain biopsy came back positive for Neursarcoidosis. A rare neurological disorder that affects the brain. This auto immune disease has contributed to her losing the capability to stand, walk, talk & what we all cherish the most "SIGHT".
The AMAZING TEAM of Doctors at Emory came up with a long term treatment plan to help with the intense symptoms from Neurosarcoidosis that has taken a toll on her body and day to day functions. They have informed us that there is no guarantee on her recovery or remission, but we are staying positive and have stepped to help in her care during her battle with this disease day by day.
July 2025, her new journey of treatments includes various visits to a Neuro Specialist, Rheumatologist, Ophthalmologist, Endocrinologist & Infectious Disease & continuous MRI's to monitor the inflammation & lesions on her brain.
Sadly, Lena has not regained her sight and will leave the home she lived in for 11 yrs. Imagine having it all and then everything taken away from you suddenly. She will no longer be able to pay towards her youngest daughter Elena's expenses who's currently a Junior in College in Nebraska, afford medical insurance for these amazing specialist and the various 17 prescriptions that is now included with her treatment plan.
Our mom is a fighter and ready to tackle this disease head on! SHE WILL RECOVER!! We are asking family & friends for your support by donating and sharing this page to your family & friends. Please help us by bring awareness about this disease. We understand these are trying times for all and appreciate anything during this difficult time for our family.
Thank you.....
Rayneis & Elena - Children
Harumi Wynn - Mother
Barbara & John Hyle -Sister & Brother-In-Law
Patricia Wynn - Sister
Cynthia, Sabria, Bobby, Corey, Earl & Miyoko-Nieces & Nephews






