Jack was born with several severe disabilities and life-limiting conditions. He requires around-the-clock nursing care. His mom hasn't been able to work since Jack was born, as she is Jack's primary nurse. And his dad is battling guarded, high-risk cancer. The family is without private insurance; the costs of little Jack’s life sustaining medical supplies alone (tracheostomy & enteral feeding) are astronomical.
Jack is a young Stittsville boy who was born with CHARGE Syndrome; a rare and life-limiting disorder that arises during early fetal development & affects multiple organ systems. Jack is Tracheostomy dependent, has a feeding tube insertion and is deaf-with vision impairment. He has had 20 surgeries to date (#21 coming soon). Jack has had numerous admissions to CHEO totaling over 2 years, and he also requires 24-hour nursing care. Jack was subsequently diagnosed with severe autism and continues to battle epilepsy…at one point over 100 visible seizures daily were common.
If you wish to follow the journey of an inspiring young boy, please like and follow: “ROCK OUT FOR JACK” on Facebook
or visit: www.rockout4jack.org
Thank you for reading❤️
Gregory Brown (Jack’s dad)
419 Montserrat Street, Stittsville
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