Ben is 36 and lives in Pulborough with his wife and golden retriever Shadow. He loves travel and especially has a soft spot for Florida. He's always had a passion for cars and loves following the F1.
Ben has sadly had a really tough time over the last 5 months. He first went into hospital in September 2023 and is still in hospital now. After struggling with a sore hip for a couple of months he was taken to Worthing hospital and got diagnosed with a fractured hip. After two weeks of scans he was then transferred to Stanmore for a biopsy as they suspected the fracture could have been caused by cancer. Stanmore sadly diagnosed Ben with a spindle cell sarcoma, a life altering diagnosis and we didn't know how awful things were going to continue to get from there. In October 2023 his tumor was 8cm so they sent him to UCLH for chemo to try and shrink it. On Dec 22nd we were told his tumor was now 14cm and chemo hadn't worked. The only option now was to do a hip disarticulation (amputation). Ben was knocked for six by this information but on 16th January 2024 he had the operation. It went as well as it could have done and he is now back in UCLH starting a further 5 more rounds chemo. We also found out his tumor was actually an agressive chondroblastic osteosarcoma.
This diagnosis has not only been physically and emotionally draining it has also really affected us financially. Ben is unable to work and as his wife I have spent a lot of time out of work caring for him. To date we have spent over £1,400 on travel and accommodation alone. This doesn't include food, fuel back and forth from hospitals and equipment we have had to purchase to help Ben.
It is not in my nature to ever ask for help and I can't put into words how much I appreciate the support we have had from family and friends to date. Life has dealt us a poor hand and we now just want to make the most out of life which starts with getting Ben home and making the necessary adjustments to our house for this to happen.
We also found out Monday that sadly the cancer has spread to his left lung. This is another massive blow for Ben.
Organizer
Jen Moore
Organizer

