Owen's Long Gap EA surgeries

Hi friends and family.

Our precious boy has been patiently awaiting surgery that will allow him to eat and swallow normally. He was born at 29 weeks old with Esophageal atresia and down syndrome, which we knew in utero. We have been in the NICU in Boise for 180 days.

Now that he is out of the premie stage, and gained enough weight he has been given the opportunity to travel to Boston Children's Hospital for his Long Gap Esophageal Atresia surgeries!

It will entail something called the Foker Process.

This involves stretching the esophagus gently over 2-4 weeks using a traction system, until it's grown enough to attach to the stomach. He will be paralyzed and sedated during this whole process.

He will then have his attachment surgery, and after recovery, start the long process of learning to feed and swallow.

We have been so blessed by the team at St Luke's and all their help in coordinating this and helping us navigate financially.

However, between flights, missing work for months, and other day to day expenses, money will be tight. We are expecting to be in Boston for 2 ish months.

If you can afford to help out in anyway possible. We would be so grateful, anything will help.

We will be updating regularly on our instragram pages. All of your positive thoughts, prayers and kind words keep us going. Thank you. ❤️