Donation protected
Create a life to SAVE a life.
The Owens Family is about to embark on a medical miracle but we need your help. Kaleigh and Ryan are blessed with two beautiful boys. Their son Noah was diagnosed at birth with a rare but deadly genetic disorder called X-Linked Adrenoleukodystrophy. If their son develops symptoms of cerebral disease, he will need a life saving bone marrow transplant. An HLA matched sibling is the best chance (nearly 100% success vs 90% with an unrelated donor) they can give Noah. Their oldest son, Nathan, has chronic neutropenia and therefore is not a good candidate for donation. Thus, in order to do this, they need to go through IVF with preimplantation genetic diagnosis (PGD). This is a very expensive process and unfortunately insurance does not cover ANY of the costs. But that isn't stopping them. Wouldn't you do anything in your power to save your child?
This is where we need your help. They are starting this IVF journey in October 2020 because time is of the essence. Any amount you can donate to this sweet family is appreciated. Thank you for helping save Noah's life!
The breakdown of costs for one round of IVF are as follows:
Medications: $4-5,000
Ultrasounds & monitoring including egg retrieval: $13,500
PGD/testing of embryos: $12,500
You can follow their journey on their You Tube channel link below:
Owens Family Journey
To find out more about this disease, please watch the following video:
What is X Linked ALD
The Owens Family is about to embark on a medical miracle but we need your help. Kaleigh and Ryan are blessed with two beautiful boys. Their son Noah was diagnosed at birth with a rare but deadly genetic disorder called X-Linked Adrenoleukodystrophy. If their son develops symptoms of cerebral disease, he will need a life saving bone marrow transplant. An HLA matched sibling is the best chance (nearly 100% success vs 90% with an unrelated donor) they can give Noah. Their oldest son, Nathan, has chronic neutropenia and therefore is not a good candidate for donation. Thus, in order to do this, they need to go through IVF with preimplantation genetic diagnosis (PGD). This is a very expensive process and unfortunately insurance does not cover ANY of the costs. But that isn't stopping them. Wouldn't you do anything in your power to save your child?
This is where we need your help. They are starting this IVF journey in October 2020 because time is of the essence. Any amount you can donate to this sweet family is appreciated. Thank you for helping save Noah's life!
The breakdown of costs for one round of IVF are as follows:
Medications: $4-5,000
Ultrasounds & monitoring including egg retrieval: $13,500
PGD/testing of embryos: $12,500
You can follow their journey on their You Tube channel link below:
Owens Family Journey
To find out more about this disease, please watch the following video:
What is X Linked ALD
Organizer and beneficiary
Jamie McAnelly
Organizer
Gulf Breeze, FL
Kaleigh Owens
Beneficiary