Oscar Arlo’s journey with Smith Magenis Syndrome
Donazione protetta
Hello Everyone!
On behalf of my little cousin Oscar,
I am making this GoFundMe to support him financially and spread awareness of SMS so we can give him the best possible start in life!
All money raised will be going directly to Oscar to help cover the costs of his weekly physio appointments, Occupational Therapy Appointments, Additional needs equipment etc.
Oscar was diagnosed with Smith Magenis Syndrome at just 5 and a half months old.
On behalf of my little cousin Oscar,
I am making this GoFundMe to support him financially and spread awareness of SMS so we can give him the best possible start in life!
All money raised will be going directly to Oscar to help cover the costs of his weekly physio appointments, Occupational Therapy Appointments, Additional needs equipment etc.
Oscar was diagnosed with Smith Magenis Syndrome at just 5 and a half months old.
Smith-Magenis syndrome (SMS) is a genetic disability due to a microdeletion or abnormality of chromosome 17.
The key symptoms of SMS include:
• mild through to profound learning disability
• severely disrupted sleep pattern
• delayed speech and language skills
• distinctive facial features
• behaviours that challenge like self-harm, aggression, impulsivity, and hyperactivity
Within Ireland there is little to no support for anyone who is diagnosed with SMS, most of the information comes from organisations in the UK & USA.
Oscar and his family need financial support to help with
- Occupational Therapy
- Osteopath Treatment
- Consultant Fees
- Hospital Fees
- Specialised Equipment etc
- Specialised sleeping tent
- And much much more..
We are also hoping if possible to raise enough money to send Oscar and His Parents to the UK in April 2022 or 2023 to visit the SMS Bright Futures 2022 conference where they will meet other families with SMS and professionals who can help support them in so many ways! Dr Ann Smith will be attending the conference and will be there to support anyone who has questions or to help with any aspects of SMS. Ann is one of the senior genetic counsellors who first described the syndrome in 1982.
So please help our little Oscar in anyway you can by donating or sharing his GoFundMe
Carly x
Oscar’s Instagram page:
Organizzatore e beneficiario
Carly Tennant
Organizzatore
Helena Gore
Beneficiario