As many of you know, I've had a mild form of Osteogenesis Imperfecta (aka "brittle bone disease") my entire life. But with only 15-20 fractures, I'm one of the lucky ones. For most folks in our community, coughing or sneezing can mean broken ribs. Putting on a shirt can lead to a broken arm. It's for these folks that I've spent the past seven years trying to raise awareness and funds for research and support.
These uncertain times have made our mission even harder. At the OIF, we've been impacted in ways we never imagined, and the need to provide for our community hasn't evaporated, it's doubled.
I know each of you are already involved with a number of worthy causes, asking for donations even under the best conditions can be tough. So, for those of you who are able and would like to contribute to the OIF during this time of extreme need, you'll be helping us face the unique challenges that come with this climate. Simply click the DONATE button below, or mail your donation to:
Osteogenesis Imperfecta Foundation
P.O. Box 824061
Philadelphia, PA 19182-4061
From the bottom of my heart, and on behalf of the more than 50,000 members of the OI community, thank you for making my final year on the OIF Board of Directors a special one!
President, OIF Board of Directors
- Nikola Stanjevich
- Elaine Kielbasa
- David Brofsky
- Ben Segura
The Osteogenesis Imperfecta Foundation, Inc
Donations are 100% tax deductible.