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We, Ron and Esem, are asking for your help to provide a better life for our son Sarron.
Sarron Paulino was born last May 04, 2020 with an APGAR Score of 9 on the first minute and 10 after 5 minutes (Appearance, Pulse, Grimace, Activity, and Respiration – five things that are used to check a baby’s health). However, an hour later they noticed cyanosis- bluish skin color which is an indication of insufficient oxygen level in the blood. They ran series of tests and then he was diagnosed with a rare congenital heart condition called Transposition of the Great Arteries (TGA).
TGA is a condition were the two arteries that carry blood from the heart to the lungs and body aren’t connected as they should be. They are reversed (transposed). This is the opposite of the normal heart and babies can’t live with this kind of condition unless they are treated.
The recommendation of the doctor was an urgent surgery. Because the current hospital where Sarron was delivered did not have expertise in this area, he had to be rushed to another hospital where a specialist could perform the surgery. 12 hours after he was born, he had his first operation - Balloon Atrial Septostomy. May 15, 2020, 11 days after, he then had his major operation - an open-heart surgery where they did the arterial switch. The heart surgery was successful; however, it developed some complications. First, the kidneys are not producing enough urine and needed extra help to flush out excess fluids in the body by putting him in Peritoneal Dialysis. Second, they noticed some seizures and has given an anti-convulsive drug and on EEG to monitor his brain activities. And lastly, he has septicemia- blood infection and currently on high dosage of antibiotics.
In addition to this, there is also a financial burden for our family. Because the baby was born with this condition, it is considered a congenital disease and not covered by insurance. The cost of the emergency transfer from the first hospital to the next and the baby needing to be in the ICU as well as the mounting bills from the 2 surgeries are too much for our family to bear currently.
We ask for your help during this time to help provide a better life for Sarron. It is difficult for us to ask, but we know as parents that it is our responsibility to provide a better life for our children.
Thank you for caring and taking the time to review this campaign.
Sarron Paulino was born last May 04, 2020 with an APGAR Score of 9 on the first minute and 10 after 5 minutes (Appearance, Pulse, Grimace, Activity, and Respiration – five things that are used to check a baby’s health). However, an hour later they noticed cyanosis- bluish skin color which is an indication of insufficient oxygen level in the blood. They ran series of tests and then he was diagnosed with a rare congenital heart condition called Transposition of the Great Arteries (TGA).
TGA is a condition were the two arteries that carry blood from the heart to the lungs and body aren’t connected as they should be. They are reversed (transposed). This is the opposite of the normal heart and babies can’t live with this kind of condition unless they are treated.
The recommendation of the doctor was an urgent surgery. Because the current hospital where Sarron was delivered did not have expertise in this area, he had to be rushed to another hospital where a specialist could perform the surgery. 12 hours after he was born, he had his first operation - Balloon Atrial Septostomy. May 15, 2020, 11 days after, he then had his major operation - an open-heart surgery where they did the arterial switch. The heart surgery was successful; however, it developed some complications. First, the kidneys are not producing enough urine and needed extra help to flush out excess fluids in the body by putting him in Peritoneal Dialysis. Second, they noticed some seizures and has given an anti-convulsive drug and on EEG to monitor his brain activities. And lastly, he has septicemia- blood infection and currently on high dosage of antibiotics.
In addition to this, there is also a financial burden for our family. Because the baby was born with this condition, it is considered a congenital disease and not covered by insurance. The cost of the emergency transfer from the first hospital to the next and the baby needing to be in the ICU as well as the mounting bills from the 2 surgeries are too much for our family to bear currently.
We ask for your help during this time to help provide a better life for Sarron. It is difficult for us to ask, but we know as parents that it is our responsibility to provide a better life for our children.Thank you for caring and taking the time to review this campaign.