Navon Needs Your Support

Sweet Navon (4) has been having  stomach issues on and off over the last year.  After numerous appointments with his pediatrician and several X-Rays, it was determined that constipation was the driving factor behind the issues. More recently, Neena (Mom), and Tony (Dad) became concerned when Navon began to stumble and fall, seemingly for no reason. 

Fast forward to Christmas Eve - Navon woke up unable to walk or move his legs at all.  Neena and Tony rushed him to Children's Hospital in St. Paul, MN where he was immediately put under anesthesia and put through a 2 hour MRI and spinal tap.  

The MRI showed an Arachnoid Cyst that had been growing on the front side of his spinal cord.  The on-call pediatric surgeon was called in and they performed emergency surgery that evening to drain the cyst.  Surgery went well but as of today he still has no function in his legs. 

Navon was transferred to Gillette Children's Hospital in St. Paul on January 7th for a 6 week in-patient rehabilitation program.  Because of Navon's demanding recovery and rehab schedule, and caring for their youngest daughter,  Nyomi (1.5), Neena and Tony have both taken a 12 week, non-paid leave from work (FMLA).   

As you can imagine, medical bills, groceries, gas, rent and everyday expenses have become difficult to manage.   Furthermore, Tony and Neena will likely need to uproot their family and move to a home to better suit Navon's possible new lifestyle should he not regain the ability to walk on his own.

Neena and Tony humbly ask for your prayers  and support during  this difficult time. Truly, anything helps. 

Please come back to this web page for weekly updates, photos and videos.  

Thank you.