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My families journey with Friedreich’s Ataxia

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Hi, I am currently trying to raise funds for my two sisters who have recently been diagnosed with a rare genetic disease called Fredreich’s Ataxia. Friedreich's ataxia is a disorder that affects some of the body's nerves. It is caused by a gene defect.. Symptoms often begin in late childhood and can include trouble walking, fatigue, changes in sensation, and slowed speech. These tend to get worse over time. There is currently no cure for this, so I am trying to raise money, firstly, to help my family fund an extension to their house so that both my sisters have downstairs bedrooms and wet rooms they can access. I have future plans to start my own charity to help fund research for Friedreich’s Ataxia and to gain funds to give my sisters the best quality of life. Any donation would be hugely appreciated ❤️
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    Organizer and beneficiary

    Paige Vella
    Organizer
    England
    Zena Newland
    Beneficiary

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