Anonymous is a wife and mother of two suffering from Severe ME/CFS, POTS & other conditions which have left her bedbound. Severe ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) and POTS (Postural Orthostatic Tachycardia Syndrome) are both debilitating, chronic conditions that profoundly affect daily life.

Severe ME/CFS is a life-shattering, multisystemic neuroimmune disease causing extreme ‘fatigue’, pain and cognitive dysfunction. Even small physical or mental exertions can lead to “post-exertional malaise” or “crashes” that worsen symptoms.

POTS disrupts how the body controls blood flow, causing a racing heart, dizziness, fainting and many other symptoms. The combination of anonymous’s conditions, have left her housebound, often bed-bound and have made the simplest tasks like showering or standing to cook nearly impossible.

However, due to family and financial pressure she is finding herself in situations where she needs to overexert, leading to a concerning deterioration in her health. She falls through the cracks in the UK care and benefits system since her husband is still working.

Ideally, she urgently needs to leave her home temporarily and have care in order to rest and stabilise. However, this is not possible financially or practically, and any government funding options will take several months to organise.

Right now, attempting to prepare meals for her household is leading to her overexerting and crashing.

We aim to raise £500 to go towards meal prep services and cleaners to help her get some stability while a more long-term solution is reached.