Michal's Journey with Harlequin Ichtyosis

Hello, this is Ania and my son Michal who has Harlequin Ichtyosis which is a genetic skin condition which affects his every-day life and requires a lot of personal care attention each day.  The purpose of this page is to raise money for a nanobubble bath from The White Company who have proven benefits for the management of skin growth in this condition. The bath helps to deep clean skin pores helping with the additional skin growth that Michal has. This bath can also dramatically improve his condition!  This nanobubble bath is a type of hydrotherapy that sheds the skin whilst the sufferer just lays in the bath and would save the time that it takes during the day to exfoliate him. More importantly, it will allow Michal the independency of looking after his own skin as he gets older and makes for a more enjoyable experience during his baths twice a day. The nanobubble bath is a nanobubble pump build in bath. It makes tiny, oxygenated bubbles that are proven to exfoliate the skin, reduce infections and has been very successful for those with Ichthyosis diseases. There are also a couple of other things that can help Michal with his every-day life including creams from all over the world such as the one we have currently been using a viviparous plant cream. We have also completed research and know that there are shampoos and masques that can be used on Michal which are expensive at this stage costing £40-£100 per item. We are looking for new methods to help Michal with his life.  I will be showcasing on the page what the money is going towards throughout all the stages to show you how much you are helping Michal and all of us as a family that can happily live with him.  Your help would be greatly appreciated. <3 Facebookm Fan Page www.fb.com/harlequinichthyosisDisclaimer: This content is exclusively managed by Caters News. To license or use in a commercial player please contact [email redacted] or call +44 [phone redacted] / [phone redacted]

Donations

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  • Anonymous 
    • £50 
    • 1 mo
  • greg sutcliffe 
    • £75 
    • 2 mos
  • Anonymous 
    • £15 
    • 3 mos
  • Luiza Rogowska  
    • £10 
    • 3 mos
  • Malgorzata Larek 
    • £50 
    • 3 mos
See all

Fundraising team (2)

Anna Ciesielska 
Organizer
Raised £820 from 26 donations
Derby, East Midlands, United Kingdom
Sebastian Wisniewski 
Team member
Raised £125 from 9 donations
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