I'm Jassi and I'm Running 10K For My Nephew Eliyas. Please Help Us Save Him

My nephew Eliyas is one year old. He is funny, fierce, and full of light. And he is fighting for his life. I need you to donate so we can all help him!

Eliyas has been diagnosed with TUBB4A related leukodystrophy, a devastating and extremely rare genetic condition that attacks the brain and can be life limiting. Only a handful of children in the entire world are known to have it.

But Eliyas has not given up. Every single day he pushes through physiotherapy, fights for every milestone, and amazes everyone around him. He is one year old and he is the bravest person I know.

His parents have found hope in a pioneering gene therapy programme at Rush University Medical Center in Chicago. This treatment could slow or alter the course of this condition and give him more time, more life. But the NHS cannot fund it, and time is everything.

That is why I am running 10 kilometres for him.

Every penny raised will go towards:

His clinical care and treatment in Chicago

Medical monitoring across a two year programme.

Supportive therapies to keep him strong.

Please donate. Please share. Help us give this little boy the chance he deserves.

He is one year old. Every pound matters.

Love Jassi.

Eliyas's Massi