For several months now, Cathy and Scott have been fighting to get some answers regarding the health of their youngest daughter Maren. Early in May, they finally received an answer, unfortunately, the answer is devastating. Maren, who will be two in June, has been diagnosed with a rare genetic disorder called Leigh’s disease. She’s been started on the right treatments to improve the quality of her life, but there is no cure, ultimately their outcome will be tragic. The impact of the disease prevents Maren from being able to eat or digest food properly so she will require a feeding tube for the rest of her life. She has special food that she requires five times daily. Maren’s needs will only get greater. Leigh’s disease affects the body’s muscular system, neurological function, gastrointestinal system, respiratory system, and cognition. There will be multiple trips to specialists, increased need for accessibility accommodations, medical procedures, etc. Not to mention the emotional toll that’s unfathomable to the rest of us. Cathy will now be staying home to care for Maren which has cut their families income in half.
Cathy and Scott are truly some of the most generous, loving and kindest people I know. It absolutely breaks my heart that their world has been completely turned upside down with this tragic news. We’ll never be able to take away the pain, but we can help relieve some of the financial burden and allow this sweet, amazing family to focus spending time loving their little girl, Maren.