My name is Dean Ibbotson. I was born with Nemaline Myopathy, a rare and little understood muscular condition that shapes nearly every part of my life. Simple tasks that many people take for granted can be exhausting and sometimes impossible for me. I want to share my experience to lift the veil on what living with this disease really looks like and to remind others that behind the medical name there are real people with hopes, challenges, and strengths.

Awareness matters because understanding leads to support, research, and solutions. That is why I am supporting A Foundation Building Strength. Their mission to find treatments for Nemaline Myopathy gives people like me a real reason to hope. When researchers can study our condition and develop therapies, it changes futures — making daily life easier, extending independence, and opening new possibilities for families and patients.

Every act of support moves us closer to answers. Your donation helps fund research, patient resources, and the scientific work needed to turn hope into tangible progress. Even if you have never heard of Nemaline Myopathy before, your belief in our potential to find treatments means more than words can say.

Please join me in supporting A Foundation Building Strength. Give what you can, share this page, and help bring awareness and momentum to the search for treatments. Together we can change lives and build a stronger future for everyone affected by Nemaline Myopathy.