Little Remys Story x

Hello! I’m Remys mom and we want to tell you about our 1 year old son Remy.

It started in December 2024 when I found Remy unresponsive in the back of the car whilst I was out doing the school run. It was the most traumatic experience I think I have ever experienced.

Remy was blue lighted to hospital where he was rushed to resus and they spent a while trying to medicate him to bring him out of a ‘seizure’. Myself and Remys dad were taken into the family room and we thought the worst. We thought we was losing our precious 1 year old baby boy.

Remy came out of the seizure but needed help with his breathing. We found out that he had an ear nose and throat infection and that apparently he had a ‘complex febrile seizure’ also his CT scan came back normal.

Christmas Day arrived and we all had fun opening our presents but once again it was short lived as Remy started having multiple episodes.

We were once again blue lighted to hospital where Remy spent another few days after having another 6 ‘seizures’. They performed an EEG test which came back normal and we were sent on our way with no answers.

Durning the next 3 month we have been through hell and back with multiple illnesses and always being on edge that Remy was going to have seizures daily. To the point where we were too scared to even leave the house.

myself and Remys dads mental health at this point had taken a serious battering with myself being put on anti depressants as my anxiety was through the roof, the night terrors were awful and the images I kept replaying in my head were indescribable.

March 2025 and Remy started having more seizures. We managed to keep him home as he had 3 seizures but seemed to cope well. A few days passed but Remy started having multiple episodes again and he was once again blue lighted to hospital where he had another 8 Seizures.

another EEG was done but once again we were sent on our way with no answers.

we have attended multiple drs appointments where they have told us that because he is under the care at the hospital that they can’t do anything. We have begged and pleaded but our voices were never listened to.

April 14th 2025. Remy had just been diagnosed with his 4th ear infection in a few weeks, where no antibiotic was even touching the sides anymore (3rd prescription) and we knew what was coming.

Remy seemed absolutely fine in the morning, he had a nap and then woke up screaming and crying. 5 minutes later he was having another seizure. Within 2 hours he had had 5 and within 7 hours he had 11 seizures.

he had already been blue lighted to hospital yet again and take into resus. His little body couldn’t come out of the cluster seizures itself so once again had to be medicated to break the cycle.

16th April 2025: Remy has now been diagnosed with Epilepsy.

he has to take medication morning and night to try and prevent seizures, but for the next few weeks/months this could mean more hospital visits as he could still have seizures whilst we find out what dose and medication is best for him.

no we know what we are dealing with, the next few months are going to be stressful whilst we try and find out what is going to work for Remy, and this will mean we will still have no wages coming in.

this has been since December and now we have come to the realisation that we need financial relief whilst we try and juggle the next chapter of Remys life whilst still trying to provide for our other two children.

myself and Ryan have really been putting this off for a while, but we have now had to bite the bullet.

so thank you from the bottom of our hearts for reading Remys story.

lauren and ryan xxx