Little Peter has a rare disease named SMA
Donation protected
Little Baby Peter is the youngest patient ever to be diagnosed with the rare disease SMA and he and his parents have been in the Pediatirc Intensive Care Unit for over 2 months from 2019 into 2020.
This poor little guy has been though everything, and his parents have been basically living at Lurie's Children's Hospital in downtown Chicago since early December 2019.
Little Baby Peter is the son of Tim & Shannon, and they are a sweet family of 5 with Peter, and them as loving parents, who just want their little guy to pull out of this.
Multiple system atrophy (MSA) is a rare neurodegenerative disorder[1] characterized by autonomic dysfunction, tremors, slow movement, muscle rigidity, and postural instability(collectively known as parkinsonism) and ataxia. This is caused by progressive degeneration of neurons in several parts of the brain including the basal ganglia, inferior olivary nucleus, and cerebellum.
Long story short - This little guy was born full-term, parents and doctors not knowing he had this disease. His parents brought him to the pediatrician thinking it was a minor virus, and now he is fighting for every single breath. He can't move his arms or legs and is basically dependent on machines and the new medication just approved - Which cost more than you can even imagine, not to mention 2 months in an PICU, one of the best in the entire nation.
He is coasting on prayers at this moment, and he is in many people's thoughts, yet his Mom, Dad, Sister, and Brother all are giving everything they can to support him, and we need to support them.
Please help us, help good people, who need it most -
This poor little guy has been though everything, and his parents have been basically living at Lurie's Children's Hospital in downtown Chicago since early December 2019.
Little Baby Peter is the son of Tim & Shannon, and they are a sweet family of 5 with Peter, and them as loving parents, who just want their little guy to pull out of this.
Multiple system atrophy (MSA) is a rare neurodegenerative disorder[1] characterized by autonomic dysfunction, tremors, slow movement, muscle rigidity, and postural instability(collectively known as parkinsonism) and ataxia. This is caused by progressive degeneration of neurons in several parts of the brain including the basal ganglia, inferior olivary nucleus, and cerebellum.
Long story short - This little guy was born full-term, parents and doctors not knowing he had this disease. His parents brought him to the pediatrician thinking it was a minor virus, and now he is fighting for every single breath. He can't move his arms or legs and is basically dependent on machines and the new medication just approved - Which cost more than you can even imagine, not to mention 2 months in an PICU, one of the best in the entire nation.
He is coasting on prayers at this moment, and he is in many people's thoughts, yet his Mom, Dad, Sister, and Brother all are giving everything they can to support him, and we need to support them.
Please help us, help good people, who need it most -
Co-organizers (5)
Max Winemiller
Organizer
Winnetka, IL
Shannon O’Rourke
Beneficiary
Ann Spieth
Co-organizer
John Spieth
Co-organizer
Karen Hore
Co-organizer
Liz Winemiller
Co-organizer