Since 2003, they have invested over $16 million in everything from basic research to late-stage drug development, and have achieved a 4-star rating form Charity Navigator for their operational efficiency and transparency.
Remember that PWS is a genetic disease that occurs randomly and can hit anyone, anytime. You can learn more about PWS and the research that is underway at the FPWR website.
If you are interested in donating directly to FPWR via check, bank transfer, appreciated stock, or any other means, please contact me and I am happy to support that process.
You can also learn more about our caregiver journey via my posts on Medium, or you can connect with me on LinkedIn or Twitter to learn more about my personal and professional work in biotech, diagnostics, and digital health.