<div>When little Ari was diagnosed with Prader-Willi syndrome (PWS), a rare and serious genetic disease with no cure, the Foundation for Prader-Willi Research (FPWR) emerged as a beacon of hope in our caregiver journey.
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<div>FPWR not only funds top-class research into new therapies and interventions for this challenging condition, but also curates content and manages a community that made a huge difference for us. <br /><br />Since 2003, they have invested over $16 million in everything from basic research to late-stage drug development, and have achieved a 4-star rating form Charity Navigator for their operational efficiency and transparency.
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<div>To help this organization continue driving impactful research and patient advocacy, Vy and I are launching this fundraiser to make sure that children with PWS have the best shot at a full, independent life.<br /><br />Remember that PWS is a genetic disease that occurs randomly and can hit anyone, anytime. You can learn more about PWS and the research that is underway at the <a href="https://www.fpwr.org" target="_blank" rel="noreferrer noopener">FPWR website</a>.<br /><br />If you are interested in donating directly to FPWR via check, bank transfer, appreciated stock, or any other means, please contact me and I am happy to support that process.  <br /><br />You can also learn more about our caregiver journey via my posts on <a href="https://medium.com/@tigerminer" target="_blank" rel="noreferrer noopener">Medium</a>, or you can connect with me on <a href="https://www.linkedin.com/in/willgreene1/" target="_blank" rel="noreferrer noopener">LinkedIn</a> or <a href="https://twitter.com/tigerminer" target="_blank" rel="noreferrer noopener">Twitter</a> to learn more about my personal and professional work in biotech, diagnostics, and digital health.  
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Little Ari's Big Fundraiser for PWS Research

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