Lilly update #4.  It pains me to update you all with less than positive news.  Lilly reported to me this morning that she had a turn for the worse yesterday and is continuing today.   She desperately needs your continued prayers.   The treatments were thought to be helping,  but have seen no progress since Friday. Dr's from around the world are meeting today to experiment on the next phase of treatment.   They need divine guidance.  Lilly is in uncharted waters with no real boat.  

She shared with me that her symptoms start with a severe battle with fever and chills.  Then,  shortly after her body opens up with even more lesions.   Each occurrence can cause 50 to 100 more across her entire body.   She is in such awful pain.  She shared with me a few pictures that i just can't come to grips to post because of the severe trauma her body is going through.   Just know,  it's as bad as you can imagine a 17 year old girl to have to go through.  She obviously is not going home for Christmas as we hoped for.

Many of you asked me "what can we do".  Her church had supported the rest of their family with meals for 2 weeks,  but now that scenario has ended.  We could provide some assistance for her mom,  dad and brother.   If any of you want to assist remotely,  I'll coordinate.  Just message me and we can figure out logistics.

She appreciates the prayers, and needs them on so many levels.   I cut and paste many of them to her, so she gets to read them.  

My hope is that this sweet young lady will become a Senior Rep for all, and not just mine.   Her story needs to live on in all of us.  She needs all of us!

Pray for Lilly.