Levente SMA
Donazione protetta
Dear People,
Make the impossible possible!
I am trying the impossible now but I think it's going to work out.
I was Levente’s mother’s tutor. He suffers from a very rare genetic disease,it called spinal muscular atrophy , the SMA type 2.
The disease means that he can slowly lose his complete freedom of movement. He was 12 month old when the doctors diagnosed the disease ,as long as he developed normal.
He currently gets therapy in Hungary called Spinraza but there is also another way.
The drug is called Zolgensma. It is the most expensive drug in the world. It costs 700 million HUF ( approximately EURO 2.3 million).
He needs to get it before his 2nd birthday and he turns 2 years old in December. So the family is under the pressure of time.
This family can't afford to raise this sort of money by themselves, so I thought I would help this way.
Maybe it's not much to you but for him it can mean freedom.
I thank everyone who can help this little angel!
Make the impossible possible!
I am trying the impossible now but I think it's going to work out.
I was Levente’s mother’s tutor. He suffers from a very rare genetic disease,it called spinal muscular atrophy , the SMA type 2.
The disease means that he can slowly lose his complete freedom of movement. He was 12 month old when the doctors diagnosed the disease ,as long as he developed normal.
He currently gets therapy in Hungary called Spinraza but there is also another way.
The drug is called Zolgensma. It is the most expensive drug in the world. It costs 700 million HUF ( approximately EURO 2.3 million).
He needs to get it before his 2nd birthday and he turns 2 years old in December. So the family is under the pressure of time.
This family can't afford to raise this sort of money by themselves, so I thought I would help this way.
Maybe it's not much to you but for him it can mean freedom.
I thank everyone who can help this little angel!
Organizzatore
Lívia Kántor
Organizzatore
